Current Projects
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2017-2018
2016-2018 2015-2018 2015-2018 |
Building a Strategy to Support Parent and Youth Partnership in Patient-Oriented Research in the Maritimes
Research Coordinator: Lauren MacEachern Funding: CIHR Patient-Oriented Research Collaboration Grant Partnerships between youth, parents and health care professionals can improve outcomes for children and youth. However, best practice evidence to support partnerships between youth, parents and researchers in child-oriented research is less robust. Methods for including parents and youth in health research in the Maritimes vary widely, with little infrastructure available to guide meaningful engagement. Mechanisms and processes are urgently needed to support the inclusion of parents, children and youth as partners in child health research. The overall goal of our project is to co-develop a strategy, with input from parents, patient engagement experts and members of the research community, to support parent-researcher partnerships in patient-oriented research in the Maritimes. Our project outputs will build capacity for patient-oriented research in a child health context. Youth and Parent Engagement Scoping Review Research Coordinator: Ashley Skinner Funding: NSHRF Development & Innovation Grant Current evidence indicates patient involvement in health services research contributes to the creation of more accessible and acceptable services and improved relevance and acceptance of research findings. However, the literature examining youth and parent engagement in health care interventions is not well defined or organized and has yet to be systematically reviewed. This project will map the existing evidence describing parental engagement in designing healthcare interventions for pediatric tertiary care. Exploring Provider-Caregiver Communications: An Observation Study Research Coordinator: Andrea Bishop Funding: CIHR Operating Grant This multi-site study will determine whether clinicians include the essential content and process elements in discharge communication with caregivers. The study will also identify communication strategies and document caregiver recall and comprehension. The data collection methods used will include non-participant observation through the use of video recording, as well as chart audits and caregiver follow-up. Publication(s): Understanding discharge communication behaviours in a pediatric emergency care context: a mixed methods observation study protocol PrEPP Study
Research Coordinator: Christine Cassidy Funding: IWK/NSHA TRIC Grant The PrEPP study will implement a patient and parent expectation (PrEPP) questionnaire at 4 emergency departments in Nova Scotia to explore emergency department productivity, resource utilization and patient satisfaction with care. This study consists of 3 phases: 1) The PrEPP tool will be implemented in EDs for a 10-month period 2) We will reflect on the tool, examine our outcome measures and refine our implementation approach if necessary 3) We will re-implement the questionnaire into emergency departments |
Completed Projects
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2015-2017
2015-2017 2016-2017 2015-2017 |
Complex Transitions of Care Study
Funding: IWK/NSHA TRIC Grant Transitions in care for children and families with complex care needs to their home districts in Nova Scotia is not optimal. The current structures and processes result in an unnecessary burden to families and patients and the healthcare system. We will use an integrated mixed methods approach to examine the current structures and processes from a patient centered perspective. This study consists of 3 phases: 1) We will use a case study design to develop multiple cases to examine the transition experience for a range of children and families with complex care needs 2) We will conduct focus groups with health care providers and parents to identify barriers and facilitators for transitions in care 3) We will host a one day workshop for multiple stakeholders to discuss findings and develop an action plan Publication(s): Strategies to support transitions from hospital to home for children with medical complexity: A scoping review Regional/Community ED Discharge Communication Qualitative Study
Research Coordinator: Allyson Gallant Funding: NSHRF Establishment Grant This study is exploring the process, content, and barriers and facilitators of discharge communication in the context of pediatric emergency care in 10 Regional/Community emergency departments across Nova Scotia. In the upcoming months we will carry out one emergency clinician focus group, as well as 6-12 interviews with caregivers at each site. Parent & Clinician Discharge Communication Qualitative Study
Funding: CIHR Operating Grant This research is examining the process and content of discharge instructions in emergency pediatric care at 6 emergency care sites across Canada. At each site, one focus group with emergency room clinicians (8-12) as well as 12 interviews with caregivers, and 2 interviews with adolescent girls will be completed in the upcoming months. REAL KT Curriculum
Funding: NSHRF Catalyst Grant Knowledge Translation (KT) is the application of knowledge to help improve health care services and the health care system. Bridging the gap between research and practice is essential to ensuring that Nova Scotians are receiving the best health care possible. The aim of this interactive curriculum is to build awareness of and capacity in KT activities in Nova Scotia and to provide the opportunity for research and decision-makers to work collaboratively. A series of workshops will be held to engage participants from different sectors of the health care system in Nova Scotia in a facilitated dialogue about KT. Local experts in KT will share current best practices regarding the use and implementation of KT science and practice. |
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2015-2016
2013-2015 |
REAL Change Intervention Workshop
Funding: NSHRF Catalyst Grant The REAL Change Intervention Workshop is funded by the NSHRF and aims to bring small teams of stakeholders in the Nova Scotia health system and public health sector together to design and implement a practice or policy change. The teams benefit from the support of knowledge translation (KT) experts and KT coaches to guide through a systematic approach to designing and evaluating their practice or policy change. This support ensures their practice or policy changes are successfully implemented and have a lasting impact on population health. Discharge Communication Delphi Study
Funding: CIHR Operating Grant This Delphi Study identified content for inclusion which will aid to ultimately develop best practice guidelines for discharge communication for caregivers of children who present to the emergency department. Using a delphi study technique, emergency department physicians and nurses from across the country were surveyed to come to a consensus on the top 5 content items which should be communicated to all caregivers across six different illness presentations. Publication(s): Essential Content for Discharge Instructions in Pediatric Emergency Care: A Delphi Study |
